Advances in Alzheimer's Research

Author(s): Yueh-Feng Y. Lu and Joan E. Haase

DOI: 10.2174/9781608058525114020017

Experience and Perspectives of Caregivers of Spouses with Mild Cognitive Impairment

Pp: 414-432 (19)

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Abstract

SHS investigation development is considered from the geographical and historical viewpoint. 3 stages are described. Within Stage 1 the work was carried out in the Department of the Institute of Chemical Physics in Chernogolovka where the scientific discovery had been made. At Stage 2 the interest to SHS arose in different cities and towns of the former USSR. Within Stage 3 SHS entered the international scene. Now SHS processes and products are being studied in more than 50 countries.

Abstract

To describe commonalities of the lived experience of being a spouse caregiver of a person with mild cognitive impairment (MCI).

Design and Methods: The Colaizzi method of empirical phenomenology was used for interviewing and analyzing data obtained from 10 spouse caregivers of persons with MCI.

Results: Four major themes were found and labeled: (a) Putting the Puzzle Pieces Together-There Really is Something Wrong; (b) A Downward Spiral into a World of Silence; (c) Consequences to Caregivers of Living in a World of Silence; (d) Taking Charge of Care.

Implications: The findings of this study provided data rich in implications for interventions to help caregivers to gain awareness, information, and skills to more effectively deal with and adjust to the caregiving of their spouse with MCI over the long-term.

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